Advocacy Efforts

Digestive Disease National Coalition (DDNC)
DDNC
www.ddnc.org
The Digestive Disease National Coalition (DDNC) is an advocacy organization comprised of the major national voluntary and professional societies concerned with digestive diseases. The DDNC focuses on improving public policy and increasing public awareness with respect to the many diseases of the digestive system. The DDNC was founded in 1978 and is based in Washington D.C.

DDNC Public Policy Forum

The 22nd annual 2012 Digestive Disease National Coalition Public Policy Forum (PPF), will be held March, 4-5, 2012, in Washington D.C.  On Sunday, the PPF will consist of presentations on federal-level digestive disease policy made by the Food and Drug Administration, the Department of Health and Human Services and others. On Monday, DDNC members have will an opportunity to meet with their congressional representatives.   

Registration is currently open at www.ddnc.org.  Please note that you must make your own reservations at the Phoenix Park Hotel. Please call 1-800-824-5419 to make your reservation. All information about the DDNC Public Policy Forum is available at www.ddnc.org.
 CSA encourages member involvement with the DDNC. Please indicate that you are representing CSA at the time of registration.

Alliance for a Stronger FDA
Alliance for a Stronger FDA
www.strengthenfda.org
The Alliance for a Stronger FDA unites a broad group of patient groups, consumer advocates, biomedical research advocates health professionals and industry to work to increase FDA‘s appropriations.  It is supported by leading public health advocates, including three former HHS Secretaries and seven FDA Commissioners. 

 

Alliance Urges President-Elect Obama to Increase Funding for FDA
Broad Stakeholder Coalition Also Requests Speedy Appointment of New FDA Commissioner
Genetic Alliance
Genetic Alliance
www.geneticalliance.org
The Genetic Alliance is a coalition of more than 600 advocacy organizations serving 25 million people affected by 1000 conditions. The organization works to transform leadership in the genetics community to build capacity in advocacy organizations and to educate policymakers by leveraging the voices of individuals and families. Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.

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