Prince Who Only Eat Lollipops gets some needed press coverage

CSA Long Island Celiac Support Group gets article on Long Island Press website http://www.longislandpress.com/2011/11/14/li-celiac-disease-support-group-helps-educate-kids/ould


Celiac Sprue Association Sells Musical CDs to Raise Awareness and Funds

The Celiac Sprue Association (CSA) has been provided a number of musical CDs in an effort to raise funds for celiac disease awareness. The revenue from the musical CDs “Tattoo” by Nelson Kole and “New in Town” by the late Paul Thomas Malinowski will be directed to fund both the CSA celiac disease awareness programs and the American Cancer Society’s program dealing with oral cancer awareness.

Kole’s musical presentation is a jazz compilation featuring piano, alto sax, bass, drums, guitar, keyboard, tenor sax, trumpet and trombone. “Tattoo” includes eleven songs composed and arranged by Nelson Kole. The CD is dedicated to his parents, Al and Harriet Kolazek.

 

Under the recording name of Paul Thomas, the late Paul Thomas Malinowski created the musical vocal CD “New in Town,” highlighting a series of twelve vocal presentations of popular songs, originally written and recorded by artists Paul McCartney, John Lennon, Harry Chapin, Carole King, John Denver and others. Several songs on the CD were also written by Nelson Kole, who authored the sister CD “Tattoo.”

Both musical CDs are for sale in the CSA web store, retailing at $15 each plus shipping and handling. The CDs can be bought online at www.csaceliacs.org or by calling toll free at 877-272-4272. The CDs will also be available at the annual CSA Conference in San Diego, CA.

 

Purchasing these musical CDs assists in CSA’s awareness campaign, promoting celiac awareness and oral cancer awareness for the American Cancer Society. This unique funding source for the Celiac Sprue Association is another way that the goal of “Celiacs Helping Celiacs” is realized.

  Paul Thomas songs-

  coming soon

 Corner Of The Sky
 I Will
 Oh How I Miss My Baby
 I'm Sorry
 Beautiful
 I'll Be Seeing You
 Pretty Eyes
 Will You Still Love Me Tomorrow
Tomorrow
 My Sweet Lady
 Circles
The More I See You

 

nelson Kole     "Tattoo"
Tattoo
Pineapple Pie
Naked
Up
Peace Offering  
Phunny Bone
White Suspenders
Hallelujah
We're Partners Now
Monterey Getaway
Smile Lines

 

 

 
   
   


CSA Long Island Celiacs Chapter #23

Welcome to the Long Island Celiac Support Group. We are here to help people understand celiac disease and adjust to the gluten-free diet. Our support group is around 350 members strong and growing. For more information contact Jim contact info below. We want to welcome everyone to participate in the process of "Celiacs Helping Celiacs".

There are an estimated 3.1 million people living on Long Island. With an estimated 1 in every 133 people potentially having celiac disease, that means there are approximately 23,000 plus people with celiac disease on Long Island.

As a CSA Chapter let's work together and increase awareness of Celiac Disease.

The Long Island Chapter Chairperson - Jim Blank

A welcome from Jim Blank 

I took over the operations of running our Long Island Celiac Support group in 2005. I was diagnosed with celiac disease in 1993 and became a member of a Long Island celiac group as well as our National CSA support organization. I have spent all that time helping people adjust to a life style change with celiac disease and the gluten-free diet.”In January 2007, I was elected to the governing board of CSA.

Contact Information
Jim Blank, Plainview, NY
516-673-7778
li_celiacs@optonline.net

We ask for a $3 donation at each meeting  to help cover the cost of the news letter and printing cost

I will be updating the groups mailing list to get a better handle on people I maybe missing. The list that I been using needs to be updated. So will everyone please fill out the form below.and bring it to the meeting or E-mail it to. li_celiacs@optonline.net  this will be the list I will be using from now on so make sure you fill it out

Name ________________________________________
 
Address _______________________________________
 
Town _______________________________

Zip Code ____________
 
Phone #  (_____) _________________
 
Email    _________________________________________
 

 I will no longer be using the our website for information I will be using our national website  at www.csaceliacs.org  check out he new website it's very informative. and then go to our webpage located under getting involved



 

2012 Chapter Activities Calendar

******Pease Note   another change in the location. We will be at the old location at the Winthrop University Hospital Outreach center for the Jan meeting and April meeting *******



Date
Day & Time
Location & Event

January 16

Monday

Chapter Meeting

Winthrop University Hospital
Winthrop University Hospital Outreach center

Shauna Del Prete, RD, CDN will be speaking at our meeting Shauna is a
Registered Dietitian at the
Thompson ShopRite
1121 Jerusalem Avenue
Uniondale, NY 11553

April 12

Thursday

7:30 pm

Chapter Meeting

I will be doing a demostration on using a microwave with gluten free baked goods. as well as talking about the national conference coming to Long Island in October
*we are still at the old location at the Winthrop University Hospital  Outreach center.

DON'T FOGET TO THE L. LODICO WALK FOR CELIAC DISEASE ON JUNE 3, 2012 . LINA NEEDS OUR HELP TO FIND PLACES THAT WILL DONATE RAFFLE PRIZES. SO IF ANYONE CAN GET A STORE TO DONATE PLEASE CONTACT LINA AT  bailod@nyc.rr.com   OR CONTACT ME
I will have flyers for the walk at the meeting

Thursday April 12 @ 7:30
Wednesday June 27 @ 7:30
Monday  October 8
 
 I am still looking for more volunteers to help plan this conference and to make it one of the biggest and best ever.
at this point we need to get the information out to stores I will have posters to hand out at the meeting to be placed in stores all over Long Island
Anyone that has a gluten free restaurant or a doctor that might want to speak to our conference please write to me or send it to maureen at csa at
Maureen Sperling
CSA Conference Coordinator
toll free: 1-877-272-4272
maureen.s@csaceliacs.org | www.csaceliacs.org
 
Volunteers are needed for getting information on
 to work at the conference on sat at the vendors fair because we might have vendors that will send products but can't come themselves contact
Sue Wickersham
Special Projects
Celiac Sprue Association
P.O. Box 31700
Omaha, NE 68131-0700
Sue.w@csaceliacs.org
1-877-272-4272 ph.
www.csaceliacs.org


Acivities for children to do at conference
points of interest for family members that are not attending the conference
If you have any information you would like to share with me please write it down, and give it to me at the support group meeting or e- mail it to me if you can't attend meeting
 

 
Those of you that have sent me your updated contact info will notice a # on this form this is an ID number to be able to keep better track of our members the number will start with 23______ if your newsletter don't have a # on it you haven't sent me your updated info
THE CHANGING WORLD OF CELIAC DISEASE     

Those members that have not sent in your updated contact list please do so or give it to me at the meeting

Winthrop University Hospital
Winthrop University Hospital Outreach center

June

3



27


Sunday



Wednesday


L. Lodico Wal for Celiac Disease


Chapter Meeting

TBD

October

4-6





8


Thursday to Saturday





Monday


Save the date:
35th Annual CSA Conference
Oct 4, 5, 6, 2012
Hyatt Regency Long Island, Hauppauge, NY



Chapter Meeting


TBD

Below are restaurants that have gluten free food

Outback steakhouse
PF Changs
Legal Seafood
Charlie Brown steakhouse
Chilli's

Pizza Bistro

4952 Merrick Rd
Massapequa Park, NY 11762
(516) 797-4747‎
g f pizza crust from scratch as well as a g f menu

A Slice of Heaven-
356 West Old Country Rd

Hicksville NY 11801
516-433-5544

Cafe Formaggio
307 Old Country Rd

Carle Place NY 11514
516-333-1718
   

Cafe Rustica
300 Middle Neck Rd
Great Neck NY
516-829-6464

Bellamore pizzeria
2719 Merrick Rd

Bellmore NY
sells gluten free pizza

Frantoni's  
(2 locations)
66 Hillside Ave
Williston Park NY 11596    
516 747 2413
 

1928 Hempstead Tpke
East  Meadow NY 11554   
516 794 7878

 Where to buy gf foods
                      

Joan's GF Great Bakes,
1905A Bellmore Avenue,
Bellmore  NY 11710
(516)804-5602

Bare Naked Bakery

2572 Merrick Rd
Bellmore NY 11710
(516)809-7370

Get Healthy America 148 Manetto Hill Rd
Plainview NY 11803

Dr  B Well Naturally
8 Washington Ave,
Plainview, NY 11803
(516) 932-9355                   

Fairway Super market
Manetto Hill Rd
Plainview NY 11803

 some gluten free companies that I found at the Fancy Food show in NY
Brothers all Natural www.brothersallnatural.com  

JK gourmet wwwjkgourmet.com

Deep River Snacks www.DeepRiverSnacks.com

Grano Vita  www.naturalalphaomega.com

garden lites 718-439-0200

la vista health foods  www.lavitahealthfoods.com

wing-time  www.wingtime.com

curly locks gourmet food www.curlylocksjelly.com

naked nuggets  www.blueribbonrestaurants.com

Coco Mira  www.cocomira.com

123 gluten free www123glutenfree.com

cherrybrookkitchen www.cherrybrookkitchen.com

conte pasta co wwwcontespasta.com

these companies I didn't have time to see but still have

gluten free products according to catalog

asti holding www.goldenbonbon.com

BelGioioso www.belgioioso.com

biscottea www.biscottea.net