CSAFacts | Celiac Sprue Association

CSA Facts
Who We Are – “Celiacs Helping Celiacs” The Celiac Sprue Association (CSA) is a worldwide member-based non-profit organization CSA is the largest non-profit celiac disease support organization in the United States.
The CSA vision is “Celiacs Helping Celiacs.” To achieve this vision, CSA pursues a mission that dedicates its efforts to helping individuals with celiac disease through research, education and support. Our member-volunteers work locally, regionally and nationally to increase awareness, improve diagnosis and treatment, and help all celiacs worldwide manage the gluten-free lifestyle. Activities and Programs Provides the latest celiac disease research data. Provides support through phone and e-mail consultations. Awards grant money for research through the CSA Peer Review Research Grant Program. Establishes and supports local celiac disease patient support chapters. Establishes and supports local CSA resource units. Maintains an informational website www.csaceliacs.org. Publishes The CSA Gluten-Free Product Listing annually. Publishes Lifeline, the CSA quarterly newsletter. Conducts the Annual CSA Conference. Conducts the Annual CSA Dietitian Day. Participates as a member of the Digestive Disease National Coalition and other advocacy organizations. Licenses the CSA Recognition Seal to companies with products and procedures free of wheat, barley, rye, and oats (WBRO-free). New Initiatives CSA Celiac Disease and Gluten Sensitivity Physician Education Program (CSA-PEP) CSA Gluten Analysis Kit for Home Use. CSA Financial Support Donations and Memberships are fully tax deductible. 98% of CSA revenue is directed to program services. History of Growth and Success
1977	– Pat Murphy Garst of Des Moines, Iowa, a celiac and cookbook author, starts the Midwestern Celiac Sprue Association (MCSA) with members in 11 states. – Officers are elected. First conference is held, 127 families from 23 states attended.
1981	– Lifeline is published.
1984	– MCSA members vote to make the organization national.
1985	– MCSA officially incorporates as the Celiac Sprue Association – United States of America (CSA).
1986	– CSA designated as an IRS 501(c)(3) charity.
2009	– 94,000 database contacts, more than 9,000 members, and over 125 chapters and resource units.
Organized to Produce Results CSA provides unique lifestyle information and distinctive products to enhance the lives of those with celiac disease. CSA’s flagship publication, Lifeline, summarizes research, updates government regulations, provides diet and lifestyle information and showcases recipes. Distribution is over 10,000 copies worldwide. The CSA Gluten-Free Product Listing keeps celiacs abreast of current gluten-free products in the fast-growing gluten-free food market. The CSA website provides individuals instant access to a library of resources including the latest celiac disease research and articles, gluten-free recipes, and online opportunities to access the celiac community. The site receives about 3.4 million hits per month. CSA’s toll-free telephone help line fields over 1,200 calls per month from the health community, food industry, governmental offices, schools and celiacs. Each call or e-mail is personally answered, thereby helping people live well with celiac disease. CSA provides ongoing consumer protection service by randomly testing products for gluten content. CSA Recognition Seal has been licensed to over 30companies. A consumer is assured that they are purchasing the best of the best in risk free choices.

P.O. Box 31700 \| Omaha, NE 68131-0700 \| 877-CSA-4-CSA \| www.csaceliacs.org \| celiacs@csaceliacs.org