Newly Diagnosed

Active CD/DH

Beginning self-management

• Eliminate all gluten exposure, including oats
• Begin developing intake plan (keep lists)
  • foods/beverages:
    • identify tolerated foods/beverages
    • identify intolerances/allergies
  • supplements/medications
    • identify vitamin/mineral supplementation needs
    • identify gluten-free medication sources
• Develop gluten identification skills
  • label reading
  • hidden sources
  • cross-contamination
• Establish medical team partnership
  • dietitian, physician, pharmacist, dentist, physical
  • therapist, psychologist, other (individual)
• Join support group
  • national and local CSA chapters

In remission

Stable

Intermediate self-management

• Establish individual evaluation method for
  • new, questionable or controversial information
  • unresolved allergy or intolerance manifestations
  • food industry manufacturing changes
• Establish individual treatment plan
  • keep a daily diary
    • record all intake, amounts and reactions
  • identify and eliminate immune-response triggers
  • wait 2-4 weeks before reintroducing new or questionable items. Monitor with your physician the introduction of such items as pure oats. It is impossible topredict who will or will not have a positive response to oats.
• Expand knowledge of CD/DH
• Expand medical and CSA partnerships

“Old-timer”

Advanced level self-management

• Maintain self-management through
  • periodic updates/re-evaluations with medical team
  • examining/evaluation new CD/DH information
  • maintaining optimal immune-function
• Revisit Steps 1 or 2 as required
• Serve as role model to newly diagnosed persons
• Maintain medical and CSA partnerships